Category Archives: Disability Noise

Before getting back to the original story – one more “thought”

Not long ago my dear friend Greg from Colorado called me and I could tell right away something was very wrong.  Greg has much the same bilateral vestibular dysfunction and effects of it as I do.  The difference between my … Continue reading

Posted in Acceptance, Addressing it, Beginnings, Disability, Disability Noise, Discovery, Expressing It, Indentity, Inspiration, Lessons, Motivation, Non Fiction, Ototoxicity, paying attention, Perception, re-educated attention, Research, Resilience, Self Help, Spirit, Thoughts, trauma, white noise | Tagged , , , , , , , , , , , , , , | Leave a comment

Address It, Express It and Silence It

           How many times have we sat and let painful thought take us away from the very moment we are in.  How many times do we allow those thoughts to remove us from the present of what is right in … Continue reading

Posted in Acceptance, Addressing it, Beginnings, Disability and Opportunity, Disability Noise, Expressing It, Identity, Inspiration, Lessons, Motivation, Non Fiction, Ototoxicity, paying attention, Perception, resilence, Self Help, Spirit, The Noise of Disability, Transition, What's noise? | Tagged , , , , , , , , , , , , , , , , , , | 2 Comments

Embrace the Shake?

            So, I’ve gotten a bit off track from sharing my story as I originally intended when I began writing this blog.  But then again, have I?  I may have “jumped the fence” to the present day but I believe … Continue reading

Posted in Acceptance, Beginnings, Disability, Disability and Opportunity, Disability Noise, Discovery, Identity, Independent Living, Inspiration, Lessons, Motivation, Non Fiction, paying attention, Perception, Resilience, Self Help, Spirit, Transition | Tagged , , , , , , , , , , , , , | Leave a comment

“I Will if You Will”…. Keeping with Present Day

Not long ago my friend Shelley Peterman-Schwarz called me.   Shelley called to check on how I was doing and I was anxious to learn how she was doing.  Turned out our hearts needed to talk with each other and we … Continue reading

Posted in Acceptance, Beginnings, Disability, Disability Noise, Discovery, Gentamicin, Identity, Inspiration, Lessons, Living with a Label, marginalization, Motivation, Non Fiction, Ototoxicity, paying attention, Perception, resilence, Resilience, Self Help, Spirit, Transition, Understanding Disability, What's noise? | Tagged , , , , , , , , , , , , , , , , , , | 2 Comments

Still in the Present Day: Going up, Coming Down, Somewhere in Between

           Things started out pretty good and seemed to be moving up and along well.  Then – I started feeling lethargic, weak, and could barely move from one place to another.  Then the rash appeared.  Yep, another allergic reaction to … Continue reading

Posted in Add another disability ingredient, Beginnings, Complex partial seizure, Disability Noise, Inspiration, Lessons, Motivation, Non Fiction, Self Help | Tagged , , , , , , , , , , , , , , , , , , | 2 Comments

Let’s Stick With Right Now, Shall We?

             I find it strangely appropriate that my blog “The Lull” showed up when it did.  It fits where I am right now rather uniquely.  How about that…             So, I’m going to continue a lull from the past and … Continue reading

Posted in Acceptance, Disability, Disability Noise, Discovery, Inspiration, Lessons, Motivation, Non Fiction, paying attention, Perception, Self Help, Transition, Understanding Disability, What's noise?, Who controls disability? | Tagged , , , , , , , , , , , , , , , , , | 2 Comments

The Lull

           Because of the “coming down” reaction I experienced and that we were now testing the device in a standing position, changes to the research protocol were required.  That meant a lull in using the TDU…  It took a long … Continue reading

Posted in Accommodations in college, Biomedical Research, Clinical Research, Disability, Disability Noise, Gentamicin, Going to college with a disability, Inspiration, Institutional Review Board, Motivation, Oscillopsia, Ototoxicity, Self Help, Sensory Substitution, Tongue Display Unit, Transition | Tagged , , , , , , , , , , , , , | Leave a comment

Now, Back to the Story…. That First “Coming Down”

           After my first extended TDU residual effect, Paul, Mitch, Yuri and I set out to investigate why I experienced the feeling of a 100-fold worsening of my vestibular dysfunction symptoms.  We couldn’t move on until all safety considerations were … Continue reading

Posted in Biomedical Research, Clinical Research, Disability, Disability Noise, Discovery, Gentamicin, Independent Living, Inspiration, Motivation, Non Fiction, Oscillopsia, Ototoxicity, paying attention, Perception, Rehabilitation, Research, Self Help, Sensory Substitution, Tongue Display Unit, Vestibular System | Tagged , , , , , , , , , , , , , | Leave a comment

Still Jettisoned to Right now but…. Okay, Pity Party Over

            This week I added a pity party post.  Felt good, really, really good.  The noise needed to come out.  So there, I have spent time with it and now it’s time to move on towards my goal with what … Continue reading

Posted in Acceptance, Disability Noise, Discovery, Inspiration, Motivation, Non Fiction, Ototoxicity, Perception, Pity Party Over, Self Help, Transition, Who controls disability? | Tagged , , , , , , , , , , | Leave a comment

This Just In… A Jettison to Right Now…

Really?  Another Addition to my DisABILITY Resume??? Pretty much all I could say this past Monday was, WTF…             This past Monday, July 8, 2013, I learned the results of an EEG I had the week prior to investigate why … Continue reading

Posted in Acceptance, Add another disability ingredient, Complex partial seizure, Disability, Disability Noise, Discovery, Inspiration, Motivation, Non Fiction, Self Help, Transition | Tagged , , , , , , , , , | 6 Comments