Hello and Welcome! My name is Cheryl Schiltz and I’ve been majoring in the experience of disability since 1997 when an adverse reaction to an antibiotic destroyed my vestibular system. I lost my sense of balance and any sense of knowing where I was in space, forcing me literally to re-learn how to walk and introducing me to disability. Along with the loss of balance came a visual disturbance called oscillopsia, my vision bounces and blurs with any movement. My experience was further compounded in 2010 when it was discovered that I had a brain aneurysm that required surgery to, as I like to put it, “clip the bubble”. Then in the summer of 2013 I began experiencing seizures caused by lesions that developed from my brain surgery.
Related to my loss of balance I took part in ground breaking sensory substitution research at the University of Wisconsin-Madison pioneered by world-renowned and esteemed doctor and scientist, Dr. Paul Bach-y-Rita. I became “Subject Zero” as well as co-investigator in this amazing research. It was this experience that set the stage for my how my life has changed.
I’ve been fortunate to have my experiences featured in several scientific publications as well as in featured articles in The New York Times, The Washington Post, Discover Magazine, New Scientist Magazine, National Geographic, PBS, On Wisconsin, and Wisconsin Public Television. My story has also been featured in two books, “Balance – In Search of the Lost Sense” by Scott McCredie and the international best-selling book, “The Brain that Changes Itself” by Dr. Norman Doidge. I was also featured in a Canadian Broadcast Company documentary of Dr. Doidge’s book.
I earned my BS in Rehabilitation Psychology from the University of Wisconsin-Madison. My “after disability” experience includes working and volunteering in vocational rehabilitation, youth transition, independent living, and disability advocacy and support. I also volunteer as a Board of Director for two separate disability related non-profit organizations.
With this project my wish is to share my experiences, journey and insights of disability thus bringing to life, “Subject Zero: A Woman’s Journey into Silencing the Noise of Disability“.
I live in Madison, Wisconsin where I enjoy my family, photography, writing, public speaking, and working to make a difference in the lives of people with and without disabilities.
Thank you for sharing this journey with me.