Category Archives: Research

Exclamations, Grants, Money, and Move

            After our amazing discovery, the lab exploded into a flurry of electrified activity!   We invited my doctor and collaborator on the project, Dr. Mark Pyle, to come and see for himself what we discovered.  Within a few days, Dr. … Continue reading

Posted in Beginnings, Biomedical Research, Clinical Research, Disability, Discovery, Gravity, Inspiration, Motivation, Non Fiction, Ototoxicity, Perception, Physical Therapy, Rehabilitation, Research, Self Help, Sensory Substitution, Tongue Display Unit, Vestibular System | Tagged , , , , , , , , , , , , , , , , , , , | Leave a comment

I Did It Without Thinking About It!

One morning I got up from bed, went downstairs, started coffee and sat at the kitchen table waiting for the first warm cup of the day.  I gazed out the window searching for signs indicating spring was on its way.  … Continue reading

Posted in Acceptance, Beginnings, Disability, Disability Noise, Gentamicin, Inspiration, Motivation, Non Fiction, Ototoxicity, paying attention, Perception, Rehabilitation, Research, Self Help, Sensory Substitution, Vestibular System | Tagged , , , , , , , , , , , , , , | 1 Comment

Excitement!

            Yuri and I looked at each other and smiled.  I stretched to the very tip of my toes to hug him as hard as I could.  I cried, Yuri held, I think he had some tears too along with … Continue reading

Posted in Biomedical Research, Clinical Research, Disability, Disability Noise, Discovery, Gentamicin, Inspiration, Motivation, Non Fiction, Oscillopsia, Ototoxicity, Perception, Research, Self Help, Sensory Substitution, Tongue Display Unit, Vestibular System | Tagged , , , , , , , , , , , , , , , | Leave a comment

What if….

With the results from the initial trials in, we pondered how, for that small amount of time after using the TDU, the changes in my ability to maintain a balanced position were occurring.  No one knew, but I was certainly … Continue reading

Posted in Clinical Research, Disability, Gentamicin, Inspiration, Motivation, Non Fiction, Ototoxicity, Perception, Rehabilitation, Research, Self Help, Sensory Substitution, Tongue Display Unit, Uncategorized, Vestibular System | Tagged , , , , , , , , , , , , , , , | 2 Comments

The Work Begins and Subject Zero is Born

After that first a-maze-ment and monumental day in that tiny lab, I went home and resumed my studies at Madison Area Technical School, now Madison College.  Amid my school work, my tests, classes and exhaustion, I couldn’t stop wondering how … Continue reading

Posted in Biomedical Research, Clinical Research, Disability, Disability Noise, Gentamicin, Inspiration, Institutional Review Board, Motivation, Non Fiction, Ototoxicity, paying attention, Perception, Rehabilitation, Research, Self Help, Sensory Substitution, Tongue Display Unit, Vestibular System | Tagged , , , , , , , , , , , , , | Leave a comment

A Jettison Back to the Future, 1998-1999

          When I was introduced to my disability I was also introduced to a lot of amazing people, each who had been introduced to the same condition from the same antibiotic as I had been.  That guy really gets around, … Continue reading

Posted in Aminoglycosides, Disability, Gentamicin, Non Fiction, Oscillopsia, Ototoxicity, Perception, Research, Self Help, Vestibular System | Tagged , , , , , , , , , , , , , , , , | 1 Comment

The Maze

The moment had arrived!  It was time to see what this sensory substitution stuff was all about.  Mitch showed me to a seat in front of a computer screen and a metal box with a knob sticking out of the … Continue reading

Posted in Disability, Disability Noise, Inspiration, Motivation, Non Fiction, Ototoxicity, Perception, Rehabilitation, Research, Self Help, Sensory Substitution, Tongue Display Unit, Vestibular System | Tagged , , , , , , , , , , , , , | Leave a comment

The First Meeting

I met Dr. Paul Bach-y-Rita for the first time on the Spring of 2002, five years after my introduction to disability.  I traveled to the UW-Madison’s Medical Sciences building where I was greeted near an entrance by Mitch Tyler, a … Continue reading

Posted in Disability, Inspiration, Motivation, Non Fiction, Ototoxicity, Perception, Rehabilitation, Research, Self Help, Sensory Substitution, Tongue Display Unit, Understanding Disability, Vestibular System | Tagged , , , , , , , , , , , , , , | Leave a comment

Sensory What?

            I began my first semester with a small load of classes as I knew from experiences I’ve already had, that exhaustion was a big deal for me.  So I spaced my classes strategically throughout the week with days off … Continue reading

Posted in Disability, Disability Noise, Gentamicin, Going to college with a disability, Inspiration, Motivation, Non Fiction, Oscillopsia, Ototoxicity, paying attention, Perception, Physical Therapy, Rehabilitation, Research, Self Help, Sensory Substitution, Tongue Display Unit, Transition, Vestibular System | Tagged , , , , , , , , , | 2 Comments

Bite of a label….

          The next couple of years were spent cleansing my life and moving thoughts to their prospective right places, either gently aside or thrown out all together.  I continued my advocacy rampage and stayed in contact with others who had … Continue reading

Posted in Acceptance, Disability, Gentamicin, Independent Living, Inspiration, Living with a Label, Motivation, Non Fiction, Oscillopsia, Ototoxicity, Perception, Physical Therapy, Rehabilitation, Research, Self Help, Transition, Vestibular System | Tagged , , , , , , , , , , , , , , , , | Leave a comment