Category Archives: Discovery

Questions, Confusion, Fear, Discovery

Chapter Nine Questions, Confusion, Fear, Discovery           The ride home with Mom was spent in painful silence, but in my head were shouts of fear, anger, confusion and uncertainty.  I sobbed most of the way home.  It was new kind … Continue reading

Posted in Aminoglycosides, Beginnings, Biomedical Research, Clinical Research, Disability, Discovery, Gentamicin, Identity, Inspiration, Motivation, Non Fiction, Oscillopsia, Ototoxicity, paying attention, Perception, Physical Therapy, Rehabilitation, Research, resilence, Self Help, Sensory Substitution, Spirit, Subject Zero, Transition, trauma, Vestibular System | Tagged , , , , , , , , , , , , , , , , | Leave a comment

The Verdict

Chapter Eight The Verdict I remember with extreme vividness the exact moment.  In the confines of a hallway that ominous feeling I had from the start exploded:  Ototoxicity, ear poisoning, permanent.  I still see the steel blue color of the … Continue reading

Posted in Aminoglycosides, Beginnings, Biomedical Research, Clinical Research, Disability, Disability Noise, Discovery, Gentamicin, Inspiration, Lessons, marginalization, Non Fiction, Oscillopsia, Ototoxicity, paying attention, Perception, Rehabilitation, Research, Resilience, Self Help, Subject Zero, Thoughts, Transition, Vestibular System | Tagged , , , , , , , , , , , , , , , , | Leave a comment

The Final Diagnosis

Chapter 7 THE FINAL DIAGNOSIS           Up to this point from previous blogs you already know what happened:  The fall, the drive to the clinic, the bouncing and blurry, the feeling of outer space, and a place of fear unlike … Continue reading

Posted in Aminoglycosides, Beginnings, Clinical Research, Disability, Disability Noise, Discovery, Gentamicin, Gravity, Identity, Inspiration, Motivation, Non Fiction, Oscillopsia, Ototoxicity, Perception, resilence, Self Help, Sensory Substitution, Spirit, The Noise of Disability, Transition, trauma, Vestibular System | Tagged , , , , , , , , , , , , , , , , | Leave a comment

How it all Started – 1995 -1997

Chapter Six How it all Started It was in 1995 and 1996 when I started experiencing complications with my menstrual cycles.  The pain was so bad I couldn’t get out of bed for the first two to three days.  I … Continue reading

Posted in Aminoglycosides, Beginnings, Biomedical Research, Disability, Discovery, Gentamicin, Gravity, Inspiration, Lessons, Motivation, Non Fiction, Oscillopsia, Ototoxicity, Perception, re-educated attention, Rehabilitation, Research, Resilience, Self Help, Sensory Substitution, Subject Zero, Tongue Display Unit, Transition, trauma, Vestibular System | Tagged , , , , , , , , , , , , , , , , | 5 Comments

Pills, Hope, and a Frightening Discovery

Chapter Five Pills, Hope and a Frightening Discovery I looked to the meclizine in hope it would take everything away.  I faithfully took each pill as instructed in anticipation that my sense of knowing where I was in space would … Continue reading

Posted in Aminoglycosides, Beginnings, Disability, Disability Noise, Discovery, Expressing It, Gentamicin, Gravity, Identity, Inspiration, Lessons, Living with a Label, Motivation, Non Fiction, Oscillopsia, Ototoxicity, Perception, Rehabilitation, Research, Resilience, Self Help, Spirit, Subject Zero, Thoughts, Transition, trauma, Vestibular System | Tagged , , , , , , , , , , , , , , , , | 2 Comments

A Band Aid, Partial Discovery

Chapter Four A Band Aid, Partial Discovery I put the Bronco in first gear and began a 50 mile drive to the clinic.  As I drove, the road looked like a multitude of roads trying to merge into one.  The … Continue reading

Posted in Aminoglycosides, Beginnings, Disability, Disability is..., Disability Noise, Discovery, Gentamicin, Gravity, Inspiration, Motivation, Non Fiction, Oscillopsia, Ototoxicity, paying attention, Perception, Resilience, Self Help, Spirit, Subject Zero, Thoughts, Transition, trauma, Vestibular System | Tagged , , , , , , , , , , , , , , , | Leave a comment

Phone Call and Drive to Hell

Chapter Three Phone Call and Drive to Hell “Something is terribly wrong!  I can’t stand up!  I can’t see!  What’s wrong with me?”   The receptionist listened as I described what was going on and placed me through to triage where … Continue reading

Posted in Aminoglycosides, Beginnings, Disability, Disability Noise, Discovery, Gentamicin, Inspiration, Living with a Label, Motivation, Non Fiction, Oscillopsia, Ototoxicity, Perception, re-educated attention, Resilience, Self Help, Spirit, Subject Zero, Thoughts, Tongue Display Unit, Transition, trauma, Vestibular System | Tagged , , , , , , , , , , , , , , | Leave a comment

Bouncing – Crawling – Falling – Battered and Bruised

Chapter Two Bouncing – Crawling – Falling – Battered and Bruised On my butt I bounced down the stairs hanging on to the railing and sliding my other hand on the opposite wall, the only lifelines I could find.  I … Continue reading

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Before getting back to the original story – one more “thought”

Not long ago my dear friend Greg from Colorado called me and I could tell right away something was very wrong.  Greg has much the same bilateral vestibular dysfunction and effects of it as I do.  The difference between my … Continue reading

Posted in Acceptance, Addressing it, Beginnings, Disability, Disability Noise, Discovery, Expressing It, Indentity, Inspiration, Lessons, Motivation, Non Fiction, Ototoxicity, paying attention, Perception, re-educated attention, Research, Resilience, Self Help, Spirit, Thoughts, trauma, white noise | Tagged , , , , , , , , , , , , , , | Leave a comment

Embrace the Shake?

            So, I’ve gotten a bit off track from sharing my story as I originally intended when I began writing this blog.  But then again, have I?  I may have “jumped the fence” to the present day but I believe … Continue reading

Posted in Acceptance, Beginnings, Disability, Disability and Opportunity, Disability Noise, Discovery, Identity, Independent Living, Inspiration, Lessons, Motivation, Non Fiction, paying attention, Perception, Resilience, Self Help, Spirit, Transition | Tagged , , , , , , , , , , , , , | Leave a comment